Title: April Fool's Day Author: Bryce Courtenay Genre: Non-fiction Rating: 8/10 # pages: 449 Date read: November |
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Summary: Courtenay's son Damon was born in Australia with severe haemophilia. Along with the moving story of an afflicted but strong-spirited boy, Courtenay paints a bitter and angry picture of the Australian medical community at that time, steeped in paternalism and political expediency.
Several times a week Damon would bleed into his joints, and his father would take him to the hospital for infusion of Factor VIII to induce clotting. In other countries families were allowed to stock Factor VIII and infuse at home, minimizing both disruption to the family and permanent damage to joints. This was not permitted in Australia, to the extreme detriment of haemophiliacs and their families.
Worse than this, the screening and fractionation of donated blood in Australia did not at that time meet safety standards known and required in other countries. Damon contracted AIDS from the contaminated Australian blood supply and died of that disease on April Fool's Day in 1991.
Review: A sad book, but really interesting. I'm glad to have read it. I never knew much about the life of a bleeder, and was amazed at how much classic bleeders have to go through to just live some resemblence of an ordinary life.
I was totally appalled at how the Courtenays were treated by a lot the medical 'industry' (for want of better word), and even more so at the fact that people were so callous about AIDS. I wonder if it was only in Australia or if it's representative of how people all over the world viewed it in the early 80s. But that's a topic for a post on its own and doesn't belong in a review.
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